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Case Studies 

Below are several Case Studies of actual members of the BRIGHT Foundation.  These parents have told their story so that other parents can learn from their experiences, but also they wish others to give them new ideas as to how they can continue to help their children.

We hope that you utilize our discussion board to begin a conversation about these stories.  Tell a little about your experiences, ask a question.  We are looking forward to hearing from you.  Professional opinions welcome. 

Alissa - Alissa was born on November 1, 2000.  The pregnancy was uneventful  and the delivery was proceeding normally in the hospital until Mom's water broke.  A moment later the fetal heart monitor showed Alissa's heart rate had dropped off the chart. Leslie had suffered a very rare and typically fatal complication called an amniotic fluid embolism.  By the odds, both mother and daughter should been lost.  Read about a story of incredible strength to survive and thrive. 

 

Discuss this case study:

Corbyn - The medical tests revealed the monster lurking in the brain of 7- week-old Corbyn, a slowly leaking sac of blood about the size of an adult thumb. Every passing second put the child in greater danger. If the aneurysm wasn't removed, Corbyn would certainly die, but chances were slim she would survive the surgery. Even if the surgery succeeds, what's the result? A disabled child? A serious emotional burden to the family for the rest of their lives?  Karyn had to give her daughter the chance.  Read about Corbyn's victory against the odds.  

Discuss this case study:

Gerard - Gerard was born on 10 October 1995 in Vienna, Austria. He weighed 5 kg and looked completely healthy. When he was two days old, he was taken to the emergency unit.  At this time, he had only 20% blood Oxygen saturation.  He was diagnosed with a Transposition of the Major Arteries, a serious heart defect where the Pulmonary Artery and Aorta are switched. He was operated on to sever and sew the Arteries into the correct position. He had major complications including Hydrocephalus (water on the brain).  A CT showed that he had extensive hypoxic brain damage.  He is now six years old and after an extensive home therapy program to optimize the plasticity of his brain, he has made remarkable progress.  Read about his success.  Discuss this case study:

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